Preparing for the future - Advanced Care Planning
Is End of Life Care important to you? Join our group working with the local NHS. Contact email@example.com
Advance Care Planning is the process of making decisions about what kind of care we would like to have in the future. It helps make sure that everyone looking after us knows what matters to us. Having these conversations with our loved ones and healthcare team can be difficult, with many of us putting them off.
We want to help everyone have these conversations about death and dying so that we can all effectively plan for our future care. Making plans in good time, or at least considering the issues involved in potential care arrangements and medical treatments, can bring peace of mind.
This is important because you told us it is important to you.
Through the engagement that helped shape our Adult Palliative and End of Life Care Strategy, we identified that communities need to be supported to talk about death and dying. We held a number of ‘Let’s talk about death and dying workshops’ and you said,
“Advance Care Planning needs to be more accessible” and “linked with the Living Well Plan to allow people with dementia to talk about their future wishes and care needs long before they are at a point of needing it”.
Alison Massey, Interim Transformation and System Commissioning Partner – Community for NHS Shropshire, Telford and Wrekin said: “Working with people who had experience of the death of someone they love, it was clear that having conversations about dying long before their loved ones’ health deteriorated would have been helpful to them.”
Anyone can complete an Advance Care Plan. For those of us with a life limiting condition or awareness that we are coming towards the end of our lives, it can become more important to have our wishes known. We may want to say what care and treatment we want, where we want to be cared for and where we want to die.
There are different ways that we can make our wishes known as explained in this short video.
In Shropshire, Telford and Wrekin an Advance Care Plan developed by local healthcare professionals, is being used. The Advance Care Plan can be completed by the person it refers to, carers, family, or the healthcare team.
This article explains how Advance Care Plans have been used: Severn Hospice to present Advance Care Planning success at the 2023 Palliative Care Conference - NHS Shropshire, Telford and Wrekin (shropshiretelfordandwrekin.nhs.uk)
The End section of the Advance Care Plan covers the information needed in a ‘RESPECT’ form.
Some of us will have completed the ‘Recommended Summary Plan for Emergency Care and Treatment’, shortened to the ‘RESPECT’ form.
This is a short plan about what should happen if a person needs health care or treatment in an emergency. It is called ReSPECT for short. ReSPECT plans are made by a patient and healthcare workers working together. They talk about what the person wants and what the choices may be. ReSPECT is a way of making sure that healthcare workers know your choices in an emergency. But if you do not have a ReSPECT plan, the healthcare workers looking after you must still do all they can to find out what you want in an emergency. For further information go to www.respectprocess.org.uk
To download the ReSPECT form, click here.
*This also includes a discussion guide and more information on what the patient does next, now that they have a completed ReSPECT form.
- ReSPECT Patient Leaflet
- ReSPECT Poster
- ReSPECT Information for Families Leaflet
- ReSPECT Patient Guide for Young People
- ReSPECT Easy Read – introduction
- ReSPECT Easy Read – making decisions
- ReSPECT Easy Read - making a ReSPECT Plan
- ReSPECT Easy Read – two stories Mark and John
- ReSPECT Easy Read – further information
If you complete either an Advance Care Plan or a ReSPECT form, or both, this will help plan for future care.
Join our supportive group made up of people with lived experience to help us encourage everyone to have the conversation and make a plan. We need people from all backgrounds, who can use their experience to think creatively about possible ideas and solutions.
The initial meeting will be in person with follow up meetings either in person or online depending on the group’s needs and wishes.
Travel expenses will be refunded, and refreshments will be provided at the in-person meetings.